Sunday, December 13, 2015

Charlotte News

The latest on the little one. She's found her own growth pattern so we are able to back off on the visits to the pediatrician and plastic surgeon. This is a good thing because going to one or the other every week was getting to be a bit much.

She had her second hearing test last week. Failed it. Which at this point means nothing. Due to the cleft palate, she pretty much lacks the ability to remove fluid from her ears on her own. The basic newborn hearing screenings require that there is no fluid in the baby's ears for the test to work.  She has fluid in her ears fairly regularly so she failed the tests. This means that there is no way to get an accurate hearing test done until the fluid is removed. The audiologist recommends putting tubes in her ears before another hearing test is performed. Both the tubes and the next level of hearing tests require sedation No one likes to put little babies under anesthesia unnecessarily so nothing will happen until her next surgery. Hopefully tubes can be put in at that point. But we have no clue on what will really happen. It's all a waiting game at this point.

So we are plugging along. And, nope, I don't have more info than that right now.

1 comment:

Dirtdartwife said...

Bullshit. Have them do a bone conduction test. They attach nodes to the back of the ears, on the bone, and do a conduction test. That gives the most accurate testing regarding hearing. No sedation, can be done in a matter of minutes, even as baby sits in your lap.

Tubes are strictly for the drainage of fluid and can be done at any point, however, speaking from experience, the longer you wait, the more damage that is done to the child's hearing, and thus, speech. Depending on the damage done to having waited so long will determine the length of time and depth of speech therapy needed to fix the damage, provided the hearing can be regained.

And the audiologist is right. Tubes need to be put in before another basic hearing test is performed because, otherwise, it's pointless. However, a bone conduction test can be done before tubes are put in and that can tell you if everything behind the tympanic membrane (ear drum) is functioning properly.

If you really want to know the functionality of her hearing, demand a bone conduction test. It can be done on infants because it doesn't require any feedback from the patient. (not like the hearing tests we used to take with the "raise your hand if you hear a buzz")

Considering the depth and severity of her cleft palate issue, I'm surprised that only the basic hearing test was offered and not the more indepth, bone conduction test, seeing how that it's a basic structural issue that would obviously prevent her from having "normal" hearing at this point in the process.

Heck, even my last baby had to have a Pediatric Audiology test at 2 weeks because he failed 2 audiology tests within the 1st week. Everyone and their brother were pretty confident he failed them because he was a c-section baby, but even when I took him in at 2 weeks, they didn't play around and they hooked up for a bone conduction test. Easy peasy, non-invasive, no anesthesia test.